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- Serious
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Patients Talk Cancer Treatment Side Effects (Neuropathy, Muscle/Joint Pain, GI Problems & More!)
Six incredible blood cancer patients hold a discussion about their most common treatment side effects, including but not limited to: fatigue, neuropathy, muscle/join pains and crams, gastrointestinal problems like diarrhea, and more.
This group comprises specifically CLL/SLL patients, posing questions for our featured specialist, Dr. Matthew Davids of Dana-Farber Cancer Institute (associated with Harvard).
Our candid patient panelists share the toughest side effects they’ve had to deal with as Dr. Davids shares his guidance on how to best manage them from his own experience.
Thank you, Pharmacyclics (Abbvie) and Janssen, for supporting our program! The Patient Story has had full editorial control over the entire program and content.
Full story & transcript → Updated Soon at www.ThePatientStory.com
The interview has only been edited for clarity.
Join Our Community:
Website : https://www.thepatientstory.com/
Facebook: @ThePatientStory
Instagram: @ThePatientStory
Twitter: @patient_story
____________________________
Contents of the Video:
00:00 - CLL Roundtable intro
01:48 - Panelist Introduction
04:34 - Whom do you go to for your CLL/SLL Care?
05:29 - BTK inhibitor currently in use.
09:51 - What were the side effects you experienced most on a BTK inhibitor?
12:20 - Is neutropenia a common BTKi side effect?
13:09 - Addressing the joint/muscle pain
17:11 - Dealing with brittle nails
19:36 - Acalabrutinib (Calquence) side effects
23:52 - GI problems on BTK inhibitors
27:43 - How often do BTK inhibitors lead to atrial fibrillation or A-fib?
28:20 - Can you get A-fib treatment and go back onto BTK inhibitors?
29:02 - BCL2 inhibitors (venetoclax)
30:54 - Concerns about tumor lysis syndrome on venetoclax
34:23 - CD20 antibodies (rituximab, obinutuzumab)
36 :13 -Doublets (two-drug treatments)
38:35 - How did you end up on a CLL clinical trial?
43:14 - CAR T-cell therapy & side effects
46:27 - Recap: seeking out specialists to deal with side effects
47:54 - CLL/SLL patients share how they get support in side effect management
____________________________
#cll #cllsm #sll #chroniclymphocyticleukemia #leukemia #btkinhibitors #ibrutinib #imbruvica #acalabrutinib #calquence #zanubrutinib #brukinsa #venetoclax #rituxan #sideeffects #qualityoflife #thepatientstory
#thepatientstory #cll #patientstories #cancerstories #cancerpatient #cancersurvivor
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